Greater Cincinnati Links
National Resources can be found at the bottom of the page.
The Spina Bifida Coalition, Inc. has compiled a list of websites that you may find helpful in learning about spina bifida and its related issues. This page offers links that enable you to leave this site and go directly to the linked site. The links are provided to assist families in locating supports, services, and information related to living with spina bifida.The SB-Coalition is not responsible for the content on or any links contained on these linked sites. Inclusion on this list of links below does not imply personal experience with or endorsement of the organization or company by the SB-Coalition, its Board of Directors or staff.
Advocacy
Education
- A Guide to Parent Rights in Special Education
- Learning Disabilities Association of Ohio – Resources specific to Ohio counties
- New Perceptions, Inc.
- Ohio Coalition for the Education of Children with Disabilities
- Ohio Early Intervention
- Ohio Office of Special Education
- Parent Mentors – Guide families through the special education process
Employment
- Opportunities for Ohioans with Disabilities
- Project SEARCH at Cincinnati Children’s
- The Point Arc Serving Northern Kentucky and Greater Cincinnati
Financial Assistance
Medical
- Bowel Management Program
- Ohio Family 2 Family – Help navigating healthcare for individuals with disabilities
- Spina Bifida Center at Cincinnati Children’s
Nutrition
Recreation
Camps
- Camp Echoing Hills
- Camp Emanuel
- Camp Joy
- Center for Courageous Kids Camp
- Summer Programs | Stepping Stones
Sporting Activities
- Butler County Challenger Baseball
- Cincinnati IceBreakers Sled Hockey
- Cincinnati Therapeutic Riding and Horsemanship
- Cincinnati TOPSoccer
- Fishing Has No Boundaries
- Miracle League Baseball
- Recreation Unlimited
- Special Olympics Hamilton County
- Adaptive Sports Coalition
- Therapeutic Recreation – Cincinnati Recreation Commission
- Wonders on Wheels – wheelchair dance
Regional Resources
- Cincinnati Children’s Ongoing Support Resources
- Circle Tail – Helping Dogs Help People
- Rubinstein Library at Cincinnati Children’s
Residential
- Affordable Housing
- CILO – Center for Independent Living Options
- Family Self-Sufficiency Program
- Ohio Housing Locator
- People Working Cooperatively Home Repairs
- SOAR – Services for the Ownership and Acquisition of Residences
National Resources
Advocacy
- Advocacy – Spina Bifida Association
- Americans with Disabilities Act
- Disability Employment Policy
- Federal Transit Administration
- Office for Civil Rights | U.S. Department of Education
- Patients Rising – Insurance and Medical Care Advocacy
Education
- Non-Verbal Learning Disability Project
- We Connect Now – Helping college students with disabilities to succeed
- Wrightslaw Special Education Law and Advocacy
Employment
Financial Assistance
- AMBUCS – Inspiring Mobility & Independence
- Oracle Health Foundation
- Social Security Disability Resource Center
- United Healthcare Children’s Foundation
Medical
- Chiari malformation
- Hydrocephalus Association
- MOMStrial – YouTube – describes the Management of Myelomenigocele Study (prenatal vs. postnatal repair)
- Health Passport Form – editable PDF
Nutrition
Online Discussion Groups
- Spina Bifida Moms – blog by a mom with spina bifida
Spina Bifida
- Right Under My Nose. A story for Children with Spina Bifida.
- SBtween2teen Facebook Group
- Spina Bifida – information from the NIH
- Spina Bifida Association – Research, Advocacy, Education, and Support