Northeast Ohio Links
National Resources can be found at the bottom of the page.
The Spina Bifida Coalition, Inc. has compiled a list of websites that you may find helpful in learning about spina bifida and its related issues. This page offers links that enable you to leave this site and go directly to the linked site. The links are provided to assist families in locating supports, services, and information related to living with spina bifida.The SB-Coalition is not responsible for the content on or any links contained on these linked sites. Inclusion on this list of links below does not imply personal experience with or endorsement of the organization or company by the SB-Coalition, its Board of Directors or staff.
Advocacy
Education
- A Guide to Parent Rights in Special Education
- Bright Beginnings – Early intervention services
- Learning Disabilities Association of Ohio – Resources specific to Ohio counties
- Ohio Coalition for the Education of Children with Disabilities
- Ohio Early Intervention
- Ohio Office of Special Education
- Parent Mentors – Guide families through the special education process
- State Support Team 3 – Resources to assist families of students with disabilities in Cuyahoga County
Employment
Financial Assistance
Medical
- Boundless – Provides person-centered care to people with intellectual and developmental disabilities (I/DD)
- Ohio Family 2 Family – Help navigating healthcare for individuals with disabilities
Recreation
- A Chance to Dance – North Pointe Ballet
- Achievement Centers for Children – Recreation and sports
- Adaptive Sports Ohio – A Chance to Play
- Akron Rotary Camp
- Blue Ribbon Adapted Recreation Programming
- Camp Echoing Hills
- Creative Arts Therapies — Beck Center for the Arts
- Dancing Wheels
- Empower Sports
- Fieldstone Farm Therapeutic Riding Center
- Friendship Circle of Cleveland
- Kids In Flight – Aviation activities and airplane rides
- Music Therapy | The Music Settlement
- Nuhop – Summer camp and outdoor education
- Rec2Connect – Recreation therapy
- Seed Yoga – Free yoga for caregivers of families with special needs
- Three Trackers of Ohio – Adaptive recreational sports
- THRIVE Tennis – Adaptive programs for children and adults
- Youth Challenge -Adapted sports and recreational activities
Regional Resources
- Cuyahoga Board of Developmental Disabilities
- Disability Services & Ministries | Catholic Charities Diocese of Cleveland
- Livespecial – Resources for individuals with disabilities and their caretakers
- UCP Cleveland – Serves children and adults with a range of disabilities
Residential
Respite
- The Shepherd’s Well – Provides respite to special needs moms
National Resources
Advocacy
- Advocacy – Spina Bifida Association
- Americans with Disabilities Act
- Disability Employment Policy
- Federal Transit Administration
- Office for Civil Rights | U.S. Department of Education
- Patients Rising – Insurance and Medical Care Advocacy
Education
- Non-Verbal Learning Disability Project
- Office of Special Education
- We Connect Now – Helping college students with disabilities to succeed
- Wrightslaw Special Education Law and Advocacy
Employment
Financial Assistance
- AMBUCS – Inspiring Mobility & Independence
- Oracle Health Foundation
- Social Security Disability Resource Center
- United Healthcare Children’s Foundation
Medical
- Chiari malformation
- Hydrocephalus Association
- MOMStrial – YouTube – describes the Management of Myelomenigocele Study (prenatal vs. postnatal repair)
- Health Passport Form – editable PDF
Nutrition
Online Discussion Groups
- Spina Bifida Moms – blog by a mom with spina bifida
Spina Bifida
- Right Under My Nose. A story for Children with Spina Bifida.
- SBtween2teen Facebook Group
- Spina Bifida – information from the NIH
- Spina Bifida Association – Research, Advocacy, Education, and Support